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dc.contributor.authorThorsen, Kirsten
dc.contributor.authorJohannessen, Aud
dc.identifier.citationJournal of Women & Aging. 2022, 35 (1), 81-97.en_US
dc.description.abstractBackground: The gendered aspects of extraordinary demanding spousal car- ing for people with young-onset dementia have been scarcely researched. Aim: To analyze spouses’ experiences of the meaning, content, and effort of intensive caring for spouses/partners with young-onset frontotemporal dementia (YO-FTD), concentrating on a female perspective. Method: A qualitative Norwegian study using narrative interviews with 10 wives and 6 husbands were conducted in 2014 and 2015. Findings: The analysis resulted in four gendered main themes: Different caregiving periods, Distancing: experiencing a transformed spouse and relationship, Social isolation, and Needing assistance and relief. A case ana- lysis of wives’ and men’s stories was applied, especially focusing on a wife’s story, to examine the detailed interrelationships between life situ- ation, caring demands, experiences, and reactions. Spousal care is influ- enced by gendered caring norms and roles. The study finds marked differences between wives and husbands in the meaning, content and sus- tainability of care, and needs for support vary. Wives endured more stress longer than husbands, with a greater emotional impact and negative health consequences, and their needs are more easily neglected. Husbands presented their needs more efficiently and obtained public relief earlier. Conclusion: Women may need more support earlier during different stages of caring for a spouse with YO-FTD. They need gender sensitive per- son-centered support to live their own lives and preserve their selves.en_US
dc.rightsNavngivelse-Ikkekommersiell 4.0 Internasjonal*
dc.titleHow gender matters in demanding caring for a spouse with young-onset dementia: A narrative studyen_US
dc.title.alternativeHow gender matters in demanding caring for a spouse with young-onset dementia. A narrative studyen_US
dc.typePeer revieweden_US
dc.typeJournal articleen_US
dc.source.journalJournal of Women & Agingen_US

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Navngivelse-Ikkekommersiell 4.0 Internasjonal
Except where otherwise noted, this item's license is described as Navngivelse-Ikkekommersiell 4.0 Internasjonal