dc.contributor.author | Thorsen, Kirsten | |
dc.contributor.author | Johannessen, Aud | |
dc.date.accessioned | 2023-02-22T12:06:55Z | |
dc.date.available | 2023-02-22T12:06:55Z | |
dc.date.created | 2022-06-07T16:55:15Z | |
dc.date.issued | 2022 | |
dc.identifier.citation | Journal of Women & Aging. 2022, 35 (1), 81-97. | en_US |
dc.identifier.issn | 0895-2841 | |
dc.identifier.uri | https://hdl.handle.net/11250/3053245 | |
dc.description.abstract | Background: The gendered aspects of extraordinary demanding spousal car- ing for people with young-onset dementia have been scarcely researched. Aim: To analyze spouses’ experiences of the meaning, content, and effort of intensive caring for spouses/partners with young-onset frontotemporal dementia (YO-FTD), concentrating on a female perspective. Method: A qualitative Norwegian study using narrative interviews with 10 wives and 6 husbands were conducted in 2014 and 2015. Findings: The analysis resulted in four gendered main themes: Different caregiving periods, Distancing: experiencing a transformed spouse and relationship, Social isolation, and Needing assistance and relief. A case ana- lysis of wives’ and men’s stories was applied, especially focusing on a wife’s story, to examine the detailed interrelationships between life situ- ation, caring demands, experiences, and reactions. Spousal care is influ- enced by gendered caring norms and roles. The study finds marked differences between wives and husbands in the meaning, content and sus- tainability of care, and needs for support vary. Wives endured more stress longer than husbands, with a greater emotional impact and negative health consequences, and their needs are more easily neglected. Husbands presented their needs more efficiently and obtained public relief earlier. Conclusion: Women may need more support earlier during different stages of caring for a spouse with YO-FTD. They need gender sensitive per- son-centered support to live their own lives and preserve their selves. | en_US |
dc.language.iso | eng | en_US |
dc.rights | Navngivelse-Ikkekommersiell 4.0 Internasjonal | * |
dc.rights.uri | http://creativecommons.org/licenses/by-nc/4.0/deed.no | * |
dc.title | How gender matters in demanding caring for a spouse with young-onset dementia: A narrative study | en_US |
dc.title.alternative | How gender matters in demanding caring for a spouse with young-onset dementia. A narrative study | en_US |
dc.type | Peer reviewed | en_US |
dc.type | Journal article | en_US |
dc.description.version | acceptedVersion | en_US |
cristin.ispublished | true | |
cristin.fulltext | original | |
cristin.qualitycode | 1 | |
dc.identifier.doi | 10.1080/08952841.2022.2087455 | |
dc.identifier.cristin | 2030021 | |
dc.source.journal | Journal of Women & Aging | en_US |
dc.source.volume | 35 | en_US |
dc.source.issue | 1 | en_US |
dc.source.pagenumber | 81-97 | en_US |