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dc.contributor.authorMilne, Richard
dc.contributor.authorMorley, Katherine I.
dc.contributor.authorAlmarri, Mohamed A.
dc.contributor.authorAtutornu, Jerome
dc.contributor.authorBaranova, Elena E.
dc.contributor.authorBevan, Paul
dc.contributor.authorCerezo, Maria
dc.contributor.authorCong, Yali
dc.contributor.authorCosta, Alessia
dc.contributor.authorFeijao, Carolina
dc.contributor.authorde Freitas, Cláudia
dc.contributor.authorFernow, Josepine
dc.contributor.authorGoodhand, Peter
dc.contributor.authorHasan, Qurratulain
dc.contributor.authorHibino, Aiko
dc.contributor.authorHoueland, Gry
dc.contributor.authorHoward, Heidi C.
dc.contributor.authorHussain Sheikh, Zakir
dc.contributor.authorMalmgren, Charlotta Ingvoldstad
dc.contributor.authorIzhevskaya, Vera L.
dc.contributor.authorJędrzejak, Aleksandra
dc.contributor.authorJinhong, Cao
dc.contributor.authorKimura, Megumi
dc.contributor.authorKleiderman, Erika
dc.contributor.authorLiu, Keying
dc.contributor.authorMascalzoni, Deborah
dc.contributor.authorMendes, Álvaro
dc.contributor.authorMinari, Jusaku
dc.contributor.authorNicol, Dianne
dc.contributor.authorNiemiec, Emilia
dc.contributor.authorPatch, Christine
dc.contributor.authorPrainsack, Barbara
dc.contributor.authorRivière, Marie
dc.contributor.authorRobarts, Lauren
dc.contributor.authorRoberts, Jonathan
dc.contributor.authorRomano, Virginia
dc.contributor.authorSheerah, Haytham A.
dc.contributor.authorSmith, James
dc.contributor.authorSoulier, Alexandra
dc.contributor.authorSteed, Claire
dc.contributor.authorStefànsdóttir, Vigdis
dc.contributor.authorTandre, Cornelia
dc.contributor.authorThorogood, Adrian
dc.contributor.authorVoigt, Torsten H.
dc.contributor.authorWang, Nan
dc.contributor.authorYoshizawa, Go
dc.contributor.authorMiddleton, Anna
dc.identifier.citationGenetics in Medicine. 2022, 25 (5), 1120-1129.en_US
dc.description.abstractPurpose: The aim of this study was to determine how attitudes toward the return of genomic research results vary internationally. Methods: We analyzed the “Your DNA, Your Say” online survey of public perspectives on genomic data sharing including responses from 36,268 individuals across 22 low-, middle-, and high-income countries, and these were gathered in 15 languages. We analyzed how participants responded when asked whether return of results (RoR) would motivate their decision to donate DNA or health data. We examined variation across the study countries and compared the responses of participants from other countries with those from the United States, which has been the subject of the majority of research on return of genomic results to date. Results: There was substantial variation in the extent to which respondents reported being influenced by RoR. However, only respondents from Russia were more influenced than those from the United States, and respondents from 20 countries had lower odds of being partially or wholly influenced than those from the United States. Conclusion: There is substantial international variation in the extent to which the RoR may motivate people’s intent to donate DNA or health data. The United States may not be a clear indicator of global attitudes. Participants’ preferences for return of genomic results globally should be considered.en_US
dc.description.sponsorshipThis work was supported by Wellcome grant 206194 to Society and Ethics Research, Wellcome Connecting Science, Wellcome Genome Campus.en_US
dc.relation.ispartofseriesGenetics in Medicine;Volume 24, Issue 5
dc.rightsNavngivelse 4.0 Internasjonal*
dc.subjectData donationen_US
dc.subjectInternational research resultsen_US
dc.subjectReturn of resultsen_US
dc.titleReturn of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countriesen_US
dc.typePeer revieweden_US
dc.typeJournal articleen_US
dc.rights.holder© 2022 The Authorsen_US
dc.source.journalGenetics in Medicineen_US
dc.relation.projectWellcome Genome Campus: 206194en_US

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Navngivelse 4.0 Internasjonal
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