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dc.contributor.authorSkarsaune, Synne Kristin Nese
dc.contributor.authorHanisch, Halvor Melbye
dc.contributor.authorGjermestad, Anita
dc.date.accessioned2021-11-08T12:20:01Z
dc.date.available2021-11-08T12:20:01Z
dc.date.created2021-11-04T09:05:16Z
dc.date.issued2021
dc.identifier.issn1501-7419
dc.identifier.urihttps://hdl.handle.net/11250/2828372
dc.description.abstractSelf-determination is often equated with independence and individual choices, which limits its relevance for persons with profound intellectual and multiple disabilities (PIMD) due to their dependency. This paper challenges the notion of independence by arguing for a rethinking of self-determination that is sensitive to lives characterised by dependency and non-verbal being. An ethnographic study informed by phenomenology emphasising embodiment shed light on how self-determination can unfold in the lives of persons with PIMD in relationships with professionals. These data are engaged in a theoretical discussion, dialoguing with theories of self-determination and ethics of care. We advocate that a rethinking involving embodied communication, partnership and ongoing processes of being understood can offer a sound way of grasping the phenomenon of self-determination, both for persons with and without PIMD.en_US
dc.language.isoengen_US
dc.publisherStockholm University Pressen_US
dc.rightsNavngivelse 4.0 Internasjonal*
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/deed.no*
dc.subjectMultiple disabilitiesen_US
dc.subjectDependencyen_US
dc.subjectSelf-determinationen_US
dc.subjectEthnographyen_US
dc.titleSelf-Determination: What can we learn from persons with profound intellectual and multiple disabilities?en_US
dc.typePeer revieweden_US
dc.typeJournal articleen_US
dc.description.versionpublishedVersionen_US
cristin.ispublishedtrue
cristin.fulltextoriginal
cristin.qualitycode1
dc.identifier.doihttp://doi.org/10.16993/sjdr.830
dc.identifier.cristin1951279
dc.source.journalScandinavian Journal of Disability Researchen_US


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