Blar i SAM - Institutt for sosialfag på forfatter "Velvin, Gry"
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Fatigue in patients with syndromic heritable thoracic aortic disease: a systematic review of the literature and a qualitative study of patients' experiences and perceptions
Velvin, Gry; Johansen, Heidi; Geirdal, Amy Østertun; Bathen, Trine (Peer reviewed; Journal article, 2023)Introduction The purpose of this study was to explore the literature on fatigue in patients with syndromic herit‑ able thoracic aortic disease (sHTAD), including Marfan syndrome (MFS), Loeys‑Dietz syndrome (LDS), vascular ... -
Work participation in adults with rare genetic diseases - a scoping review
Velvin, Gry; Dammann, Brede; Haagensen, Trond; Johansen, Heidi; Strømme, Hilde; Geirdal, Amy Østertun; Bathen, Trine (Peer reviewed; Journal article, 2023)Background Work participation is a crucial aspect of health outcome and an important part of life for most people with rare genetic diseases. Despite that work participation is a social determinant of health and seems ...