• Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data? 

      Middleton, Anna; Milne, Richard; Almarri, Mohamed A.; Anwer, Shamim; Atutornu, Jerome; Baranova, Elena E.; Bevan, Paul; Cerezo, Maria; Cong, Yali; Critchley, Christine; Fernow, Josepine; Goodhand, Peter; Hasan, Qurratulain; Hibino, Aiko; Houeland, Gry; Howard, H. C.; Hussain, S. Zakir; Malmgren, Charlotta Ingvoldstad; Izhevskaya, Vera L.; Jędrzejak, Aleksandra; Jinhong, Cao; Kimura, Megumi; Kleiderman, Erika; Leach, Brandi; Liu, Keying; Mascalzoni, Deborah; Mendes, Álvaro; Minari, Jusaku; Wang, Nan; Nicol, Dianne; Niemiec, Emilia; Patch, Christine; Pollard, Jack; Prainsack, Barbara; Rivière, Marie; Robarts, Lauren; Roberts, Jonathan; Romano, Virginia; Sheerah, Haytham A.; Smith, James; Soulier, Alexandra; Steed, Claire; Stefansdottir, Vigdis; Tandre, Cornelia; Thorogood, Adrian; Voigt, Torsten H.; West, Anne V.; Yoshizawa, Go; Morley, Katherine I. (American Journal of Human Genetics;volume 107, issue 4, Peer reviewed; Journal article, 2020-10-01)
      Analyzing genomic data across populations is central to understanding the role of genetic factors in health and disease. Successful data sharing relies on public support, which requires attention to whether people around ...
    • Researcher attitudes toward data sharing in public data repositories: a meta-evaluation of studies on researcher data sharing 

      Thøgersen, Jennifer Lea; Borlund, Pia (Journal of Documentation;, Peer reviewed; Journal article, 2021-05-31)
      Purpose – The purpose of this paper is to report a study of how research literature addresses researchers’ attitudes toward data repository use. In particular, the authors are interested in how the term data sharing is ...
    • Understanding the Data Management Plan as a Boundary Object through a Multi-stakeholder perspective 

      Kvale, Live Håndlykken; Pharo, Nils (International Journal of Digital Curation;Vol. 16, Iss. 1, Peer reviewed; Journal article, 2021-07-04)
      A three-phase Delphi study was used to investigate an emerging community for research data management in Norway and their understanding and application of data management plans (DMPs). The findings reveal visions of what ...