dc.contributor.author | Thorsen, Kirsten | |
dc.contributor.author | Dourado, Marcia | |
dc.contributor.author | Johannessen, Aud | |
dc.date.accessioned | 2021-01-28T08:37:29Z | |
dc.date.accessioned | 2021-03-05T08:13:21Z | |
dc.date.available | 2021-01-28T08:37:29Z | |
dc.date.available | 2021-03-05T08:13:21Z | |
dc.date.issued | 2020-08-11 | |
dc.identifier.citation | Thorsen, Dourado, Johannessen. Awareness of dementia and coping to preserve quality of life: a five-year longitudinal narrative study. International Journal of Qualitative Studies on Health and Well-being. 2020;15(1):1-14 | en |
dc.identifier.issn | 1748-2623 | |
dc.identifier.issn | 1748-2631 | |
dc.identifier.uri | https://hdl.handle.net/10642/9872 | |
dc.description.abstract | Purpose: To examine how people (<65 years) with young-onset dementia (YOD) express awareness of dementia and how they seem to handle awareness as a strategy to preserve quality of life over time.Method: A longitudinal qualitative study with individuals with YOD was performed with interviews every 6 months over 5 years for a maximum of 10 interviews. The interviews were analysed by modified grounded theory adapted to narrative inquiry.Results: Awareness is a complex, multidimensional concept. Awareness of dementia is predisposed by personality, life history and established coping styles. The main coping styles during dementia—live in the moment, ignore the dementia, and make the best of it—seem to be rather consistent throughout disease progression. Transitions in the life situation may change the individual’s awareness of dementia.Conclusion: Unawareness of dementia may have an important adaptive function for preser-ving quality of life. Increasing awareness of dementia must be approached with reflexivity and great sensitivity | en |
dc.description.sponsorship | The Research Council of Norway supported the study. | en |
dc.language.iso | en | en |
dc.publisher | Taylor & Francis | en |
dc.relation.ispartofseries | International Journal of Qualitative Studies on Health and Well-being;Volume 15, 2020 - Issue 1 | |
dc.rights | Creative Commons Attribution 4.0 International (CC BY 4.0) License | en |
dc.rights.uri | https://creativecommons.org/licenses/by/4.0/ | |
dc.subject | Awareness | en |
dc.subject | Coping | en |
dc.subject | Dementia | en |
dc.subject | Young-onset dementia | en |
dc.subject | Longitudinal studies | en |
dc.subject | Life quality | en |
dc.subject | Qualitative narrative studies | |
dc.title | Awareness of dementia and coping to preserve quality of life: a five-year longitudinal narrative study | en |
dc.type | Journal article | en |
dc.type | Peer reviewed | en |
dc.date.updated | 2021-01-28T08:37:29Z | |
dc.description.version | publishedVersion | en |
dc.identifier.doi | https://doi.org/10.1080/17482631.2020.1798711 | |
dc.identifier.cristin | 1820518 | |
dc.source.journal | International Journal of Qualitative Studies on Health and Well-being | |