Coping with transitions in life: a four-yearlongitudinal narrative study of single youngerpeople with dementia
Journal article, Peer reviewed
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OriginalversjonJohannessen A, Engedal K, Haugen PK, Dourado MCN, Thorsen K. Coping with transitions in life: a four-yearlongitudinal narrative study of single youngerpeople with dementia. Journal of Multidisciplinary Healthcare. 2019;12:479-492 https://dx.doi.org/10.2147/JMDH.S208424
Background: People with younger onset dementia (YOD <65 years) experience a great transformation of existential life. Living alone, they lack the support of a partner, and have a higher risk of moving into a residential care facility. Aim: To explore how people living alone with YOD experience and cope with transitions during the progression of dementia. Method: A longitudinal qualitative approach was used. From 2014 to 2018, we interviewed 10 persons with YOD every 6 months for up to four years. Findings: Two significant main transitions and themes were registered under the perspective; experiencing and coping with (1) receiving the diagnosis of dementia and (2) moving to a residential care facility, which covers two subthemes: moving to a supported living accommodation and moving to a nursing home. To get the diagnosis was initially experienced as a dramatic disaster, while moving to residential care were mainly experienced as positive. With efficient cognitive and emotion-focused coping strategies, the participants adapted and experienced a mostly good life for a long time. Conclusion: People with dementia can describe their lived experiences for a long time after receiving the diagnosis. They adapt and preserve a feeling of a rather good life by the efficient use of various coping strategies. High-quality public support is of significant importance to assist them in sustaining quality of life and vitality.
UtgiverDove Medical Press
SerieJournal of Multidisciplinary Healthcare;Volume 12
TidsskriftJournal of Multidisciplinary Healthcare
Med mindre annet er angitt, så er denne innførselen lisensiert som © 2019 Johannessen et al. This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution–Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/).