Psychosocial outcome and resilience after paediatric liver transplantation in young adults
Journal article, Peer reviewed
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Original versionMayer, Junge, Goldschmidt, Leiskau, Becker T, Lehner, Richter, Van Dick R, Baumann U, Pfister. Psychosocial outcome and resilience after paediatric liver transplantation in young adults. Clinics And Research in Hepatology and Gastroenterology. 2019;43(2):155-160 https://dx.doi.org/10.1016/j.clinre.2018.08.017
Background and objective: The long-term psychosocial outcome of young adults after paediatric liver transplantation (LT) was investigated with the focus on day-to-day living. We aimed to capture patients’ subjective perceptions of well-being and autonomy based on key physical outcome parameters. Methods: All patients following paediatric LT at Hannover Medical School born before 2002 with a post-transplant follow-up of at least four years were included in this study. This retrospective observational study compared psychosocial parameters obtained from a self-designed 77-item questionnaire with standard clinical outcome variables. Results: Eighty-two patients (male: 57%) aged 13–41 years were included in the survey within a three-month period (response rate: 41%). With an adherence rate of 33%, all but two patients were immunosuppressed. In total, 53 patients had transitioned to adult care largely without problems. Eighty-three percent (n = 68) evaluated their current health status as “(very) good”. Sixty-seven patients (82%) did not experience health-related anxiety in daily life. Conclusions: Our results demonstrate psychological stability and high self-esteem of young patients, as well as good integration into society and a high degree of normality during daily life after LT. Adherence rates are lower than anticipated and do not correlate with patients’ understanding of their medical condition.