Blar i Senter for velferds- og arbeidslivsforskning (SVA) på forfatter "Engedal, Knut"
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Adult children of parents with young-onset dementia narrate the experiences of their youth through metaphors
Johannessen, Aud; Engedal, Knut; Thorsen, Kirsten (Journal of multidisciplinary healthcare;8, Journal article; Peer reviewed, 2015-05-27)Background: Limited research exists on the development and needs of children of parents with young-onset dementia (YOD) (<65 years old). There is scarce knowledge of how these children experience the situation of growing ... -
Coping with transitions in life: a four-yearlongitudinal narrative study of single youngerpeople with dementia
Johannessen, Aud; Engedal, Knut; Haugen, Per Kristian; Dourado, Marcia Cristina Nascimento; Thorsen, Kirsten (Journal of Multidisciplinary Healthcare;Volume 12, Journal article; Peer reviewed, 2019-05-15)Background: People with younger onset dementia (YOD <65 years) experience a great transformation of existential life. Living alone, they lack the support of a partner, and have a higher risk of moving into a residential ... -
Family Carers of People with Young-Onset Dementia: Their Experiences with the Supporter Service
Johannessen, Aud; Engedal, Knut; Thorsen, Kirsten (Journal article; Peer reviewed, 2016)Background: Family carers and people with young-onset dementia (YOD) require tailored assistance as dementia progresses. A variety of health care services is needed, including supporter services. To our knowledge, research ... -
"To be, or not to be": Experiencing deterioration among people with young-onset dementia living alone
Johannessen, Aud; Engedal, Knut; Haugen, Per Kristian; Dourado, Marcia Cristina Nascimento; Thorsen, Kirsten (International Journal of Qualitative Studies on Health and Well-being;Volume 13, 2018 - Issue 1, Journal article; Peer reviewed, 2018-07-05)Having dementia before the age of 65 (YOD) represents a radical break from an agenormative and expected life course. The disease afflicts the person’s identity, threatens the self-image and self-confidence, and erodes the ...