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dc.contributor.authorKallander, Ellen Katrine
dc.contributor.authorWeimand, Bente
dc.contributor.authorHanssen-Bauer, Ketil
dc.contributor.authorVan Roy, Betty
dc.contributor.authorRuud, Torleif
dc.date.accessioned2021-01-12T11:02:57Z
dc.date.accessioned2021-02-24T13:29:13Z
dc.date.available2021-01-12T11:02:57Z
dc.date.available2021-02-24T13:29:13Z
dc.date.issued2020-05-07
dc.identifier.citationKallander EK, Weimand BM, Hanssen-Bauer K, Van Roy B, Ruud T. Factors associated with quality of life for children affected by parental illness or substance abuse. Scandinavian Journal of Caring Sciences. 2020en
dc.identifier.issn0283-9318
dc.identifier.issn1471-6712
dc.identifier.urihttps://hdl.handle.net/10642/9719
dc.description.abstractBackground: There have been inconsistent findings from studies examining factors associated with quality of life (QoL) for children affected by parental illness. Aim: The aim of this study was to explore factors associated with self-reported QoL in children affected by parental illness or parental substance abuse. Design: A cross-sectional multicentre study. Methods: The sample included 246 families with children 8–18 years recruited via ill parents who received treatment for severe physical illness, mental illness or substance abuse in specialised health services. We performed multiple linear regression analyses to examine factors associated with the children’s self-reported QoL. Main outcome measure: KIDSCREEN-27. Results: The children’s self-reported QoL was positively associated with the ill parent’s self-reported physical health, the children’s self-reported social skills, the degree to which other adults took over the ill parent’s responsibilities, provision of sibling care, provision of health care for the ill parent and positive outcome of caregiving. The children’s QoL was negatively associated with the children’s self-reported responsibilities due to parental illness, provision of emotional care for the ill parent, negative outcomes of caregiving and external locus of control. The model explained 63% of the variance (adjusted R2) in children’s total QoL. Study limitations: Sampling bias may have occurred during recruitment. Conclusions: The findings suggest factors of importance for the children’s QoL. Clinicians should assess whether an ill parent’s physical health may influence negatively on their ability to perform daily responsibilities at home and care for their children, and clinicians can use children’s self-reported QoL to identify children who are most negatively affected.en
dc.description.sponsorshipThis study was funded by the Research Council of Norway (ID: 213477), the Norwegian Directorate of Health and the participating partners in the study.en
dc.language.isoenen
dc.publisherWileyen
dc.relation.ispartofseriesScandinavian Journal of Caring Sciences;Volume 35, Issue 2
dc.rightsCreative Commons Attribution 4.0 International (CC BY 4.0) Licenseen
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectLife qualityen
dc.subjectYoung carersen
dc.subjectYoung caregiversen
dc.subjectParental severe physical illnessesen
dc.subjectParental mental illnessesen
dc.subjectParental substance abuseen
dc.subjectCross-sectional studiesen
dc.titleFactors associated with quality of life for children affected by parental illness or substance abuseen
dc.typeJournal articleen
dc.typePeer revieweden
dc.date.updated2021-01-12T11:02:57Z
dc.description.versionpublishedVersionen
dc.identifier.doihttps://doi.org/10.1111/scs.12868
dc.identifier.cristin1809957
dc.source.journalScandinavian Journal of Caring Sciences


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