Users' and researchers' construction of equity in research collaboration

Abstract

Background: Equity is described as an ideal in user involvement in research and is mentioned in the health service literature and in several guidelines. Still, equity is described as being difficult to obtain and the concept is rarely clarified or concretized. Objective: Seeing equity as socially constructed the objective for this study is to explore users' and researchers' constructions of equity in research processes. Design and Method: The study had a qualitative research design. Constructions of equity were analysed through the lens of positioning theory. Two focus group interviews consisting of both users and researchers were conducted. Findings: The thirteen users and four researchers considered ‘equity’ as an important part of user involvement in research. Storylines about norms, responsibility, language, knowledge and usefulness evolved in the discussions. These storylines elucidated unequal access to rights and duties. Discussion and conclusion: Users and researchers constructed equity in user involvement differently, but the difference was masked by an apparent agreement. Users and researchers drew on different storylines. The researchers emphasized the scientific discourse and although users acknowledged this discourse, they attempted to oppose this dominant discourse by drawing on a lay discourse. The identified constructions and negotiations of equity may contribute in new understandings of an equal collaboration in user involvement in research.