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dc.contributor.authorFjose, Marianne
dc.contributor.authorEilertsen, Grethe
dc.contributor.authorKirkevold, Marit
dc.contributor.authorGrov, Ellen Karine
dc.date.accessioned2018-10-29T14:23:35Z
dc.date.accessioned2018-12-17T14:23:13Z
dc.date.available2018-10-29T14:23:35Z
dc.date.available2018-12-17T14:23:13Z
dc.date.issued2018-09-29
dc.identifier.citationFjose MF, Eilertsen GE, Kirkevold M, Grov EK. “Non-palliative care” – a qualitative study of older cancer patients’ and their family members’ experiences with the health care system. BMC Health Services Research. 2018;18(745):1-12en
dc.identifier.issn1472-6963
dc.identifier.issn1472-6963
dc.identifier.urihttps://hdl.handle.net/10642/6439
dc.description.abstractBackground: Among all cancer patients in the palliative phase, ¾ have reached the age of 65. An aging population will increase the number of people afflicted with cancer, and create challenges for patients, family members and health services. Nevertheless, limited research has focused explicitly on the experiences and needs of older cancer patients in the palliative phase and their families. Therefore, the aim of this study is to explore what older home dwelling cancer patients in the palliative phase and their close family members, as individuals and as a family, experience as important and difficult when facing the health services. Methods: We used a qualitative descriptive design. Data was collected through family group interviews with 26 families. Each interview consisted of an older home dwelling cancer patient and one to four family members with different relationships to the patient (e.g. spouse, adult children and/or children-in-law). Data was analysed by qualitative content analysis. Results: The main theme is “Non-palliative care”–health care services in the palliative phase not tailored to family needs. Three themes are revealed: 1) exhausting cancer follow-up, 2) a cry for family involvement, and 3) fragmented care. Conclusion: The health services seem poorly organised for meeting the demands of palliative care for older home dwelling cancer patients in the palliative phase and their family members. Close family members would like to contribute but health services lack systems for involving them in the follow-up of the patient.en
dc.language.isoenen
dc.publisherBMCen
dc.relation.ispartofseriesBMC Health Services Research;18:745
dc.rights© The Author(s). 2018 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. Creative Commons-lisensen er mer spesifikt Attribution 4.0 International (CC BY 4.0).en
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectPalliative careen
dc.subjectOlder cancer patientsen
dc.subjectFamily caregiversen
dc.subjectFamily researchen
dc.subjectHealth servicesen
dc.title“Non-palliative care” – a qualitative study of older cancer patients’ and their family members’ experiences with the health care systemen
dc.typeJournal article
dc.typeJournal articleen
dc.typePeer revieweden
dc.date.updated2018-10-29T14:23:35Z
dc.description.versionpublishedVersionen
dc.identifier.doihttp://dx.doi.org/10.1186/s12913-018-3548-1
dc.identifier.cristin1622695
dc.source.journalBMC Health Services Research


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© The Author(s). 2018 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

Creative Commons-lisensen er mer spesifikt Attribution 4.0 International (CC BY 4.0).
Med mindre annet er angitt, så er denne innførselen lisensiert som © The Author(s). 2018 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. Creative Commons-lisensen er mer spesifikt Attribution 4.0 International (CC BY 4.0).