• Work participation in adults with rare genetic diseases - a scoping review 

      Velvin, Gry; Dammann, Brede; Haagensen, Trond; Johansen, Heidi; Strømme, Hilde; Geirdal, Amy Østertun; Bathen, Trine (Peer reviewed; Journal article, 2023)
      Background Work participation is a crucial aspect of health outcome and an important part of life for most people with rare genetic diseases. Despite that work participation is a social determinant of health and seems ...