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dc.contributor.authorStaats, Katrine
dc.contributor.authorGrov, Ellen Karine
dc.contributor.authorHusebø, Bettina
dc.contributor.authorTranvåg, Oscar
dc.date.accessioned2020-11-15T15:42:12Z
dc.date.accessioned2021-02-11T09:13:07Z
dc.date.available2020-11-15T15:42:12Z
dc.date.available2021-02-11T09:13:07Z
dc.date.issued2020-10-28
dc.identifier.citationStaats, Grov, Husebø, Tranvåg. Dignity of older home-dwelling women nearing end-of-life: Informal caregivers’ perception . Nursing Ethics. 2020en
dc.identifier.issn0969-7330
dc.identifier.issn1477-0989
dc.identifier.urihttps://hdl.handle.net/10642/9518
dc.description.abstractBackground: Most older people wish to live in the familiar surroundings of their own home until they die. Knowledge concerning dignity and dignity loss of home-dwelling older women living with incurable cancer should be a foundation for quality of care within municipal healthcare services. The informal caregivers of these women can help increase the understanding of sources related to dignity and dignity loss Aim: The aim of this study was to explore informal caregivers’ perceptions of sources related to dignity and dignity loss in end-of-life of older home-dwelling women with incurable cancer. Research design and method: The study was founded upon Gadamer’s philosophical hermeneutics. Indepth interviews with 13 informal caregivers were carried out, and four participant observations were performed during home meetings. Ethical consideration: The study was based on voluntary participation, informed consent, confidentiality and the opportunity to withdraw at any time. The Norwegian Social Science Data Services approved the study. Results: Three main sources important in preserving the older women’s dignity were identified: maintaining one’s self-concept, remaining hopeful and sustaining freedom of choice. We also identified three main sources that lead to dignity loss: Sensing loss of human value, experiencing absence of gentleness and feelings of being treated as an object. Discussion and final considerations: On the individual level, the opportunity to maintain one’s selfconcept and control in life, preserved dignity, while feelings of existential loneliness led to dignity loss. On the relational level, being confirmed as worthy human beings promoted the women’s dignity, whereas dignity loss was related to uncaring behaviours from healthcare professionals. On the societal level, individual decisions concerning travel situations and the place to stay when nearing end-of-life were of crucial importance. Constituting these women’s living space, these perspectives should be emphasized in healthcare professionals’ educational training and in the municipal end-of-life care of these patients.en
dc.description.sponsorshipThe author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This research was supported by the Dam Foundation and University of Bergen.en
dc.language.isoenen
dc.publisherSAGE Publicationsen
dc.relation.ispartofseriesNursing Ethics;
dc.rightsThis article is distributed under the terms of the Creative Commons Attribution 4.0 Licenseen
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectPractice areasen
dc.subjectOlder personsen
dc.subjectCare dignityen
dc.subjectEmpirical approachesen
dc.subjectHome careen
dc.subjectPalliative careen
dc.titleDignity of older home-dwelling women nearing end-of-life: Informal caregivers’ perceptionen
dc.typeJournal articleen
dc.typePeer revieweden
dc.date.updated2020-11-15T15:42:12Z
dc.description.versionpublishedVersionen
dc.identifier.doihttps://doi.org/10.1177/0969733020956372
dc.identifier.cristin1843026
dc.source.journalNursing Ethics


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This article is distributed under the terms of the Creative Commons Attribution 4.0 License
Med mindre annet er angitt, så er denne innførselen lisensiert som This article is distributed under the terms of the Creative Commons Attribution 4.0 License