Blar i ODA Open Digital Archive på forfatter "West, Anne V."
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Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
Milne, Richard; Morley, Katherine I.; Almarri, Mohamed A.; Anwer, Shamim; Atutornu, Jerome; Baranova, Elena E.; Bevan, Paul; Cerezo, Maria; Cong, Yali; Costa, Alessia; Critchley, Christine; Fernow, Josepine; Goodhand, Peter; Hasan, Qurratulain; Hibino, Aiko; Houeland, Gry; Howard, Heidi C.; Hussain, S. Zakir; Malmgren, Charlotta Ingvoldstad; Izhevskaya, Vera L.; Jędrzejak, Aleksandra; Jinhong, Cao; Kimura, Megumi; Kleiderman, Erika; Leach, Brandi; Liu, Keying; Mascalzoni, Deborah; Mendes, Álvaro; Minari, Jusaku; Nicol, Dianne; Niemiec, Emilia; Patch, Christine; Pollard, Jack; Prainsack, Barbara; Rivière, Marie; Robarts, Lauren; Roberts, Jonathan; Romano, Virginia; Sheerah, Haytham A.; Smith, James; Soulier, Alexandra; Steed, Claire; Stefànsdóttir, Vigdis; Tandre, Cornelia; Thorogood, Adrian; Voigt, Torsten H.; Wang, Nan; West, Anne V.; Yoshizawa, Go; Middleton, Anna (Genome Medicine;13, Article number: 92 (2021), Peer reviewed; Journal article, 2021-05-25)Background: Public trust is central to the collection of genomic and health data and the sustainability of genomic research. To merit trust, those involved in collecting and sharing data need to demonstrate they are ... -
Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
Middleton, Anna; Milne, Richard; Almarri, Mohamed A.; Anwer, Shamim; Atutornu, Jerome; Baranova, Elena E.; Bevan, Paul; Cerezo, Maria; Cong, Yali; Critchley, Christine; Fernow, Josepine; Goodhand, Peter; Hasan, Qurratulain; Hibino, Aiko; Houeland, Gry; Howard, H. C.; Hussain, S. Zakir; Malmgren, Charlotta Ingvoldstad; Izhevskaya, Vera L.; Jędrzejak, Aleksandra; Jinhong, Cao; Kimura, Megumi; Kleiderman, Erika; Leach, Brandi; Liu, Keying; Mascalzoni, Deborah; Mendes, Álvaro; Minari, Jusaku; Wang, Nan; Nicol, Dianne; Niemiec, Emilia; Patch, Christine; Pollard, Jack; Prainsack, Barbara; Rivière, Marie; Robarts, Lauren; Roberts, Jonathan; Romano, Virginia; Sheerah, Haytham A.; Smith, James; Soulier, Alexandra; Steed, Claire; Stefansdottir, Vigdis; Tandre, Cornelia; Thorogood, Adrian; Voigt, Torsten H.; West, Anne V.; Yoshizawa, Go; Morley, Katherine I. (American Journal of Human Genetics;volume 107, issue 4, Peer reviewed; Journal article, 2020-10-01)Analyzing genomic data across populations is central to understanding the role of genetic factors in health and disease. Successful data sharing relies on public support, which requires attention to whether people around ...