Browsing ODA Open Digital Archive by Author "Najam, Adhiyat"

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Patient engagement partnerships in clinical trials (PEP-CT): protocol for the systematic development and testing of patient partner and investigator decision aids

Parry, Monica; Ceroni, Tina; Wells, David; Richards, Dawn P.; April, Katrine Toupin; Ansari, Hafsa; Bjørnnes, Ann Kristin; Burnside, H; Cavallo, Sabrina; Day, Andrew; A, Ellis; Feldman, Debbie; Gilron, Ian; Najam, Adhiyat; Zulfiqar, Zoya; Marlin, Susan (BMJ Open;Volume 12, Issue 2, Peer reviewed; Journal article, 2022-02-21)

Introduction: Building capacity to improve sex/gender knowledge and strengthen patient engagement in clinical trials requires training and support. The overall goal of this 2-year project is to refine, translate and evaluate ...
Patient Engagement Partnerships in Clinical Trials: Development of Patient Partner and Investigator Decision Aids

Parry, Monica; Bjørnnes, Ann Kristin; Toupin April, K; Najam, Adhiyat; Wells, David; Sivakumar, A; Richards, Dawn; Ceroni, Tina; Park, Marianne; Ellis, Anne K; Gilron, Ian; Marlin, Susan (Patient;13, Journal article; Peer reviewed, 2020-10-07)

Background: A 2017 systematic review suggested patient engagement in clinical trials has been limited, with little active engagement in trial design or data analysis, interpretation or dissemination. Additionally, there ...