Browsing ODA Open Digital Archive by Author "Lee, Anja"
Now showing items 1-4 of 4
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Making room for life and death at the same time – a qualitative study of health and social care professionals’ understanding and use of the concept of paediatric palliative care
Winger, Anette; Albertini Früh, Elena; Holmen, Heidi; Kvarme, Lisbeth Gravdal; Lee, Anja; Bruun Lorentsen, Vibeke; Misvær, Nina; Riiser, Kirsti; Steindal, Simen Alexander (BMC Palliative Care;21, Article number: 50 (2022), Peer reviewed; Journal article, 2022-04-11)Background: The concept of pediatric palliative care (PPC) is applied diferently within the healthcare system and among healthcare professionals (HCPs). To our knowledge, no studies have investigated how multidisciplinary ... -
Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs—a scoping review
Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Riiser, Kirsti; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Mariussen, Kari; Lee, Anja (Peer reviewed; Journal article, 2023)Background - Measuring outcomes facilitates evaluation of palliative services for children, adolescents, and young adults (CAYAs) with life-limiting and/or life-threatening (LL/LT) conditions. Implementation of patient-reported, ... -
Patient-reported outcome measures in pediatric palliative care—a protocol for a scoping review
Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Riiser, Kirsti; Mariussen, Kari; Lee, Anja (Systematic Reviews;10, Article number: 237 (2021), Peer reviewed; Journal article, 2021-08-28)Background: In pediatric palliative care (PPC), there is a need to involve the child’s voice in situations regarding their symptoms and care needs. Patient-reported outcome measures (PROMs) can be tools to systematically ... -
Stories of paediatric palliative care: a qualitative study exploring health care professionals’ understanding of the concept
Riiser, Kirsti; Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Lee, Anja; Bruun Lorentsen, Vibeke; Misvær, Nina; Albertini Früh, Elena (Peer reviewed; Journal article, 2022)Background By sharing patient stories, health care professionals (HCPs) may communicate their attitudes, values and beliefs about caring and treatment. Previous qualitative research has shown that HCPs usually associate ...