dc.contributor.author | Thorsen, Kirsten | |
dc.contributor.author | Dourado, Marcia Cristina Nascimento | |
dc.contributor.author | Johannessen, Aud | |
dc.date.accessioned | 2020-02-27T10:15:27Z | |
dc.date.accessioned | 2020-02-28T13:35:16Z | |
dc.date.available | 2020-02-27T10:15:27Z | |
dc.date.available | 2020-02-28T13:35:16Z | |
dc.date.issued | 2018 | |
dc.identifier.citation | Thorsen K, Dourado MCN, Johannessen A. Developing dementia: The existensial experience of the quality of life With young-onset dementia- A longitudinal case study. Dementia. 2018 | en |
dc.identifier.issn | 1471-3012 | |
dc.identifier.issn | 1471-3012 | |
dc.identifier.issn | 1741-2684 | |
dc.identifier.uri | https://hdl.handle.net/10642/8199 | |
dc.description.abstract | Background:
Cognition and the ability to take care of daily activities and oneself gradually declines among people with dementia. Studies are scarce, especially regarding how people with young-onset dementia (YOD) (<65 years) experience the quality of their lives with the progression of dementia. People with dementia living alone face special challenges.
Aim: To examine the experience of the quality of life with YOD as a single person.
Method: The study presents a longitudinal case study with in-depth interviews exploring the experiences of a person with YOD. Individual interviews were conducted seven times over a period of three years from 2014 to 2017.
Findings: We examined if and how seven themes concerning the quality of life and well-being were fruitful for understanding the experiences of dementia in the everyday life of a single individual. The study explored needs and challenges during the development of dementia, and how the person reacted over time, set in context. The themes significant for well-being are: identity, connectedness, security, autonomy, meaning, growth and joy.
Conclusion: The study shows how treatment, support, and services must be individualized when dementia develops in order to support identity, resources and mastering capacity, and promote well-being. | en |
dc.language.iso | en | en |
dc.publisher | SAGE Publications | en |
dc.relation.ispartofseries | Dementia;Article first published online July 30, 2018 | |
dc.rights | Author can archive post-print (ie final draft post-refereeing).
Author's post-print on author's personal website, departmental website, institutional website, institutional repository or other repositories, including PubMed Central. | en |
dc.subject | Coping | en |
dc.subject | Early onset dementia | en |
dc.subject | Existential needs | en |
dc.subject | Health care | en |
dc.subject | Health promotions | en |
dc.subject | Subjective experiences | en |
dc.title | Developing dementia: The existensial experience of the quality of life With young-onset dementia- A longitudinal case study | en |
dc.type | Journal article | en |
dc.type | Peer reviewed | en |
dc.date.updated | 2020-02-27T10:15:27Z | |
dc.description.version | acceptedVersion | en |
dc.identifier.doi | https://dx.doi.org/10.1177%2F1471301218789990 | |
dc.identifier.cristin | 1798090 | |
dc.source.journal | Dementia | |