dc.contributor.author | Mayer, Katrin | |
dc.contributor.author | Junge, Norman | |
dc.contributor.author | Goldschmidt, Imke | |
dc.contributor.author | Leiskau, Christoph | |
dc.contributor.author | Becker, Thomas | |
dc.contributor.author | Lehner, Frank | |
dc.contributor.author | Richter, Nicolas | |
dc.contributor.author | Van Dick, Rolf | |
dc.contributor.author | Baumann, Ulrich | |
dc.contributor.author | Pfister, Eva-Doreen | |
dc.date.accessioned | 2019-11-22T12:06:13Z | |
dc.date.accessioned | 2019-11-25T14:05:38Z | |
dc.date.available | 2019-11-22T12:06:13Z | |
dc.date.available | 2019-11-25T14:05:38Z | |
dc.date.issued | 2019-02-05 | |
dc.identifier.citation | Mayer, Junge, Goldschmidt, Leiskau, Becker T, Lehner, Richter, Van Dick R, Baumann U, Pfister. Psychosocial outcome and resilience after paediatric liver transplantation in young adults. Clinics And Research in Hepatology and Gastroenterology. 2019;43(2):155-160 | en |
dc.identifier.issn | 2210-7401 | |
dc.identifier.issn | 2210-7401 | |
dc.identifier.issn | 2210-741X | |
dc.identifier.uri | https://hdl.handle.net/10642/7852 | |
dc.description.abstract | Background and objective: The long-term psychosocial outcome of young adults after paediatric liver transplantation (LT) was investigated with the focus on day-to-day living. We aimed to capture patients’ subjective perceptions of well-being and autonomy based on key physical outcome parameters.
Methods: All patients following paediatric LT at Hannover Medical School born before 2002 with a post-transplant follow-up of at least four years were included in this study. This retrospective observational study compared psychosocial parameters obtained from a self-designed 77-item questionnaire with standard clinical outcome variables.
Results: Eighty-two patients (male: 57%) aged 13–41 years were included in the survey within a three-month period (response rate: 41%). With an adherence rate of 33%, all but two patients were immunosuppressed. In total, 53 patients had transitioned to adult care largely without problems. Eighty-three percent (n = 68) evaluated their current health status as “(very) good”. Sixty-seven patients (82%) did not experience health-related anxiety in daily life.
Conclusions: Our results demonstrate psychological stability and high self-esteem of young patients, as well as good integration into society and a high degree of normality during daily life after LT. Adherence rates are lower than anticipated and do not correlate with patients’ understanding of their medical condition. | en |
dc.description.sponsorship | This study was financially supported by the parents’ association “Billy Rubin – Förderverein Kindergastroenterologie MHH E.V.” | en |
dc.language.iso | en | en |
dc.publisher | Elsevier | en |
dc.relation.ispartofseries | Clinics and Research in Hepatology and Gastroenterology;Volume 43, Issue 2 | |
dc.rights | © 2018. This manuscript version is made available under the CC-BY-NC-ND 4.0 license http://creativecommons.org/licenses/by-nc-nd/4.0/ | en |
dc.subject | Liver transplantations | en |
dc.subject | Paediatric | en |
dc.subject | Psychosocial outcomes | en |
dc.subject | Life qualities | en |
dc.subject | Transitions | en |
dc.subject | Adherence | en |
dc.title | Psychosocial outcome and resilience after paediatric liver transplantation in young adults | en |
dc.type | Journal article | en |
dc.type | Peer reviewed | en |
dc.date.updated | 2019-11-22T12:06:13Z | |
dc.description.version | acceptedVersion | en |
dc.identifier.doi | https://dx.doi.org/10.1016/j.clinre.2018.08.017 | |
dc.identifier.cristin | 1705052 | |
dc.source.journal | Clinics And Research in Hepatology and Gastroenterology | |